Thursday, April 18, 2013

04-15-2013 Eickbush Family Update

Ok, so yes I know this has been a long time since my last post, but life seems to get in the way of my doing due diligence of keeping everyone updated on what is going on. The last couple of months since we have gotten home fromCraig has been such a whirlwind it seems just like yesterday, but I see such improvements in Peter it is great, however there are still things that need more improvement, and ha is why we do therapy 3 times week at CRMC as well as at home therapy. We have been trying since December to get Peter on what is called the brain waiver program here in Wyoming, however it seems with ever step forward we go we take two steps back...... The red tape makes it extremely time consuming and can almost make a person want to throw your hands up in disgust. I at times wonder if going through the motions and all the paperwork are worth it but I know that for the sake of Peter it is what is needed for the best care and to be able to get some help with taking care of Peter as I didn't realize how much work it was taking care of someone 24/7. I have had some help from our sister Sharleen which has been well needed as without that at this point I probably would have gone crazy with Dora's schedule, trying to work 2 jobs and take care of Peter and help with dad.
These last two weeks have given me cabin fever and really ready for spring with all this snow and being snowed in. It is great to be living in the country again as that is really where my heart has always been, but really!! Driving Dora 1/2 hour to school because there are no openings in her school where we live now in interesting. Just praying one opens up soon, or at least by the beginning of the next school year as she is really looking forward to riding the bus which will stop right at our front door.
Peter is getting stronger, and we are working on getting him more independent, getting dressed, having a schedule of what the day will bring so he knows what to expect and can carry out some task on his own. At which he is getting better at. He is getting stronger and the nearly sessions are getting harder. They are pushing him and it seems to be working well. We had a check up at Craig hospital last week and they were impressed with all the progress than he has made since he has left and just want for it to continue.
Dad has been able to come to town on occasion and it has been interesting to see how much Peter lights up when asked if he would like to go shopping with him of which I say of course. I and the therapist agree as long as it is positive and continues to stay that way, the interaction between them is a good thing so allowing it can only be good for both of them.
Mike and Dora have been spending time up a Chugwater, mike has been helping Uncle Elmer and when Dora gets tired of being with dad she gets lots of grandpa time of which, even though I am not sure if grandpa will admit it, he really enjoys it and she does to. She ant seem to get enough of all the time she gets to spend exploring all the crocks and crannys of grandpas space. She recently made a recycled snail for school and is so proud to as she made it all from grandpas junk pile :). If only you could have heard that conversation. It was and interesting one.
We are finally settled into our new place, which we love, it is wonderful to have much more new space and a better space for Peter and all of us really. We are hoping to have a house warming party at some point but all are welcome to stop by at any point. Just give me a call to make sure we aren't at therapy. We usually do therapy Monday, Wednesday, and Fridays. My number is 307-631-6797
We have set up a " For the Benefit Account for Peter Eickbush" at Oregon Trail Bank at any of the branches in Guernsey, Chugwater, and Cheyenne, so those that wish to can contribute. If you would like to have the account information so you can just transfer please contact Naomi Loomis or Joanna Lulf and we can get that information for you.