Tuesday, January 13, 2015

Peters update Jan 2015

Peter has been a trooper through is brain injury.  One can only imagine how hard it must be to go from a functional person to relying on others to help.   Just when we were making great strides along came a new diagnosis that is heartbreaking. Cancer , even though it is not malignate,  it is still life endangering.  It complicates his already complicated diagnosis.  

We are super luck to have a great family and with out Frank and the kids I am sure to have lost my mind at this point.
For the past years I have treated and felt as if Peter is my child, I have since quit my job to stay home and take care of him,  not an easy decision for being a single parent you must provide for your children in anyway possible.  I have faith and hope that because I am at his side we will survive this struggle too.  
His insurance however is not doing its job,  multiple appts a week, to and from Denver , Casper , and around Cheyenne including therapy sessions makes for a busy life.. Whew who woulda thought it would turn out this way?
Not me for sure ,  I look to God for guidance every day to make sure that I am doing what I should be, it's scary, I don't want to loose anyone else.  With prayers , doctors and family hopefully we can overcome this hurdle to.

I am including a link if you choose to help with medical and transportation cost. http://www.gofundme.com/jb3a0k

Vestibular schwannoma (also known as acoustic neuroma, acoustic neurinoma, or acoustic neurilemoma) is a benign, usually slow-growing tumor that develops from the balance and hearing nerves supplying the inner ear. The tumor comes from an overproduction of Schwann cells--the cells that normally wrap around nerve fibers like onion skin to help support and insulate nerves. As the vestibular schwannoma grows, it presses against the hearing and balance nerves, usually causing unilateral (one-sided) or asymmetric hearing loss, tinnitus (ringing in the ear), and dizziness/loss of balance. As the tumor grows, it can interfere with the face sensation nerve (the trigeminal nerve), causing facial numbness. Vestibular schwannomas can also press on the facial nerve (for the muscles of the face) causing facial weakness or paralysis on the side of the tumor. If the tumor becomes large, it will eventually press against nearby brain structures (such as the brainstem and the cerebellum), becoming life-threatening