Peters update Jan 2015

Peter has been a trooper through is brain injury.  One can only imagine how hard it must be to go from a functional person to relying on others to help.   Just when we were making great strides along came a new diagnosis that is heartbreaking. Cancer , even though it is not malignate,  it is still life endangering.  It complicates his already complicated diagnosis.  

We are super luck to have a great family and with out Frank and the kids I am sure to have lost my mind at this point.
For the past years I have treated and felt as if Peter is my child, I have since quit my job to stay home and take care of him,  not an easy decision for being a single parent you must provide for your children in anyway possible.  I have faith and hope that because I am at his side we will survive this struggle too.  
His insurance however is not doing its job,  multiple appts a week, to and from Denver , Casper , and around Cheyenne including therapy sessions makes for a busy life.. Whew who woulda thought it would turn out this way?
Not me for sure ,  I look to God for guidance every day to make sure that I am doing what I should be, it's scary, I don't want to loose anyone else.  With prayers , doctors and family hopefully we can overcome this hurdle to.

I am including a link if you choose to help with medical and transportation cost. http://www.gofundme.com/jb3a0k

Vestibular schwannoma (also known as acoustic neuroma, acoustic neurinoma, or acoustic neurilemoma) is a benign, usually slow-growing tumor that develops from the balance and hearing nerves supplying the inner ear. The tumor comes from an overproduction of Schwann cells--the cells that normally wrap around nerve fibers like onion skin to help support and insulate nerves. As the vestibular schwannoma grows, it presses against the hearing and balance nerves, usually causing unilateral (one-sided) or asymmetric hearing loss, tinnitus (ringing in the ear), and dizziness/loss of balance. As the tumor grows, it can interfere with the face sensation nerve (the trigeminal nerve), causing facial numbness. Vestibular schwannomas can also press on the facial nerve (for the muscles of the face) causing facial weakness or paralysis on the side of the tumor. If the tumor becomes large, it will eventually press against nearby brain structures (such as the brainstem and the cerebellum), becoming life-threatening

Eickbush Family Update 03/10/2014

Hello all from the great state of Wyoming,

    It has been almost a year past since the last update on Peter and our family.  Lots of changes good and bad. Lots of struggles, but in that it has taught us only to be stronger and to go forward.
    Peter is doing really well,  he is back in therapy for PT, OT and a few other things that are private.  Overall he is doing really well.  It is now just Dora, Peter, and I (Joanna) however we are keeping our heads up and making the best of the situation.  Peter has really started to enjoy spending time writing letters and drawing.  His memory is continuing to come back.  However his short term memory we are still working on.  His left side is still weak hence the therapy.
    I coach soccer and basketball and try to involve him as much as it allows.  Again this year we all went to the mountains and went tubing.   I know, I know risky, however the smile on his face was priceless.  The people who worked the lifts were so helpful and I was so grateful they made the day a great success.   He  had a great time and is wanting to go back for more.  Not to sure if we will get back this year but we now know that he is capable of doing it so we will try again.

Dora is doing very well in school and is loving basketball and soccer.  Soccer is about to start up again which she is soooooo looking forward to.  Basketball just got over for the season and it went better then expected.  She seems to be the ever growing child.  These are the days where I miss my mom the most.   We are hoping that with the additional therapy that peter is getting that his left side will continue to improve.  That's the hope at least.  Well that is all for now.  Hoping all are well.

Joanna Eickbush

04-15-2013 Eickbush Family Update

Ok, so yes I know this has been a long time since my last post, but life seems to get in the way of my doing due diligence of keeping everyone updated on what is going on. The last couple of months since we have gotten home fromCraig has been such a whirlwind it seems just like yesterday, but I see such improvements in Peter it is great, however there are still things that need more improvement, and ha is why we do therapy 3 times week at CRMC as well as at home therapy. We have been trying since December to get Peter on what is called the brain waiver program here in Wyoming, however it seems with ever step forward we go we take two steps back...... The red tape makes it extremely time consuming and can almost make a person want to throw your hands up in disgust. I at times wonder if going through the motions and all the paperwork are worth it but I know that for the sake of Peter it is what is needed for the best care and to be able to get some help with taking care of Peter as I didn't realize how much work it was taking care of someone 24/7. I have had some help from our sister Sharleen which has been well needed as without that at this point I probably would have gone crazy with Dora's schedule, trying to work 2 jobs and take care of Peter and help with dad.
These last two weeks have given me cabin fever and really ready for spring with all this snow and being snowed in. It is great to be living in the country again as that is really where my heart has always been, but really!! Driving Dora 1/2 hour to school because there are no openings in her school where we live now in interesting. Just praying one opens up soon, or at least by the beginning of the next school year as she is really looking forward to riding the bus which will stop right at our front door.
Peter is getting stronger, and we are working on getting him more independent, getting dressed, having a schedule of what the day will bring so he knows what to expect and can carry out some task on his own. At which he is getting better at. He is getting stronger and the nearly sessions are getting harder. They are pushing him and it seems to be working well. We had a check up at Craig hospital last week and they were impressed with all the progress than he has made since he has left and just want for it to continue.
Dad has been able to come to town on occasion and it has been interesting to see how much Peter lights up when asked if he would like to go shopping with him of which I say of course. I and the therapist agree as long as it is positive and continues to stay that way, the interaction between them is a good thing so allowing it can only be good for both of them.
Mike and Dora have been spending time up a Chugwater, mike has been helping Uncle Elmer and when Dora gets tired of being with dad she gets lots of grandpa time of which, even though I am not sure if grandpa will admit it, he really enjoys it and she does to. She ant seem to get enough of all the time she gets to spend exploring all the crocks and crannys of grandpas space. She recently made a recycled snail for school and is so proud to as she made it all from grandpas junk pile :). If only you could have heard that conversation. It was and interesting one.
We are finally settled into our new place, which we love, it is wonderful to have much more new space and a better space for Peter and all of us really. We are hoping to have a house warming party at some point but all are welcome to stop by at any point. Just give me a call to make sure we aren't at therapy. We usually do therapy Monday, Wednesday, and Fridays. My number is 307-631-6797
We have set up a " For the Benefit Account for Peter Eickbush" at Oregon Trail Bank at any of the branches in Guernsey, Chugwater, and Cheyenne, so those that wish to can contribute. If you would like to have the account information so you can just transfer please contact Naomi Loomis or Joanna Lulf and we can get that information for you.

Latest update on Peter Eickbush 3/19/2013

Here we are again.  Our busy lives these days have made it difficult to find the time to do updates.  However it is necessary so I found I just have to make the time.  I was asked a few days ago and finally I am making the time to do what I should have all ready done.

Peter is doing remarkable.  Each and Every day we see improvements after improvements.  Since he has been back home with my Sister (Joanna)  he has been going to OT, ST, & PT  three times a week and the other two days he has Chiropractic treatments and Massage of which has really made a huge improvement in his mobility and his thinking.

He can almost walk with very little assistance.  However someone still needs to be right there with their hand on him in case he should stumble or start to fall.  When he first came home he used the walker quite a bit, but since then we discovered that he actually does better without it.  Also, I gave him showers almost every other day and at first had to do most all of it, but as time has gone on Peter can do most of it by himself with little asisstance.  Joanna has been great with it all.  It is very wearing on her and at times she feels like this would just be a bad dream and she would wake up and it would never have happened, but reality is that is did and even though those thoughts flood our head and especially hers - She keeps on keeping on.  Joanna has also implemented the Therapy exercises outside of Therapy at home and has really been working with Peter at home quite a bit  which has really helped him understand that he needs to really do the work in order to keep improving and hopefully one day be able to do it on his own.

Peters personality has really changed since the accident.  He has been quite the jokester.  Laughs alot and pulls jokes on people. It has really been a joy to see some inner expressions come out and facial expressions show up that he has never had before the accident.  Also, he has been doing very remarkable about recognizing when he eats a meal  that he has had enough and he is full.

I story was shared about a mule that fell into a hole and was crying crying crying and the farmer came by and decided it was to much trouble the hole and mule so he called all the neighbors together and told them to start filling the hole with dirt and bury the mule get it out of its misery. So they started doing just that, but the mule got to thinking each time a scoop of dirt hit him he would shrug and shake it off and step up.  So he did and eventually climbed out of the hole.  I likend this to Peter foremost because he could of just given up and let this incident get the best of him but every time something has been thrown at him he has shook it off and kept stepping up and his determination has gotten him this far and has had so much progress.  Also, this is for my wonderful sister Joanna who has been there day in and day out and the many times that she could've and probably wanted to just let the dirt bury her - She has just shrugged and shook and stepped up over and over again.  SUCH DETERMINATION!!!!

Prayer is such a powerful thing.  I would like to thank all for your kind words and thoughtful prayers.  We still need them each and every day  so please don't stop keep them coming.

If you would like to see Peter please feel free to contact Joanna Lulf and let her know you are coming so that we can make sure Peter is up and ready and not at a therapy appt. or such.  He would love to have the company and it is wonderful therapy for him.

I would also like to take a moment and thank my sister Joanna for all the hard work that you have put in to making Peter comfortable and helping improve.  It definitely shows and just remember keep shrugging it off and step up eventually it will be easier.


Shar Johnson

2/22/2013 Update

   Well, Peter made it home , and it has been quite the eventful week,  We have all got the flu bug and so it has made the transition time quite interesting.  We have started the out patient therapy and it seems to be going well.  It has been nice to have the continued support of the Craig Hospital staff for any question that I have and we now have some other great doctors here in Cheyenne on board that are also helping to follow Peter's care.  For me I had thought things would be easier when we got home but things have been so hectic in getting everything set up and trying to make sure things are safe and getting paperwork done that time for sleep just seems to elude me.
  We have been able to take Peter to Dora's basketball games and he has seemed to enjoy them.  I treated him to a pedicure and he really enjoyed the experience as well.  I have it set up that he gets 3 massage sessions a week as well as chiropractic care and that along with the therapy sessions seems to be making a big difference in how his body is responding to the treatment.  His left side is becoming stronger everyday and for that we are thankful.  
  With just a month until the big moving day, I am trying to make sure we have all he logistic's worked out so there is min. stress on Peter and that things will go smooth. We hopefully will have enough people to help that one day and we will be moved and I can at least get all of his room done and organized so that it is familiar.  We will just be moving to the east side of Cheyenne so it won't be such a hard move and it will be better all around once we get a house that is more user friendly for Peter. 
  Everyone is more then welcome to come by and see Peter and he would welcome visitors.  Our current house is easy to find and if you need directions just call or our address is 621 Vista Ln in Cheyenne.

We have set up a " For the Benefit Account for Peter Eickbush" at Oregon Trail Bank at any of the branches in Guernsey, Chugwater, and Cheyenne, so those that wish to can contribute. If you would like to have the account information so you can just transfer please contact Naomi Loomis or Joanna Lulf and we can get that information for you

Peter Update 02/03/2013

Update from Craig hospital 02/03/2013:

It has once again been longer then it should have for an update on Peter.  Time seems to get away from me as the days run together as well as the weeks.  He is doing really, really well down here and is improving daily. 

We will be returning to Cheyenne on the 14th of Feb, to Home.  Yay I can't wait to finally have him home.  It has been a long haul since the 16th of November. yet it seems like just yesterday since I got the phone call and I couldn't believe that something was wrong. 

We had a conference with all the doctors and therapists on the 31st and it went well, they all seem to think that Peter, with time and more out patient rehab will make an almost if not full recovery to the point of what he was prior to the accident.  however with ever TBI, there will always be residual issue to deal with like frustration, memory function, anger, etc.  all things that we can deal with we just have to learn the right tools and that is what they are teaching me now.  It is so nice to be somewhere that knows and only deals with brain injuries as it gives us such a better picture of what is to come. 

Peter has become a social butterfly here something that I hope I can help him continue once we get home.  He was the "bat chi" ball champion today and has really enjoyed playing ping pong, the WII, and blow darts,  so far no one has been able to beat him at blow darts.  These are all part of his therapy sessions as they try to make it fun so he doesn't realize he is using that left arm and leg so as not to get him so agitated and it works. 

He was able to attend a wonderful gate clinic which enabled them to see that for now he needs a special brace for his left leg in order to stabilize his walking abilities.  His walking is doing really well, and he can really cruise in the wheelchair now which is his main mode of transportation.

We have had the honor of meeting people from all over the country from all different types of accidents,  but one thing remains in common with all of us, we all pray, we all have hope for a better tomorrow, we all are here for our loved ones, we all have those at home we have left behind to care those who are here,  even though I miss my daughter and family at home it helps knowing that I am not suppose to feel sorry for myself because 1.) I am not the one who has to endure hours of therapy every day and 2.) I do have a 2nd family in those who are also here supporting there loved ones. 
We will be doing our out patient rehab in Fort Collins 3-4 days a week and hope to get him in some type of pool therapy as well in Cheyenne.  It will take up to a year of this in order to complete the process but it will be well worth all the travel and time that it takes to get him back up to speed.

It is great to see Peters new " outlook" you could say as it is a change from what we are all used to. He used to have flat expressions and now he is a real jokster and he has a great smile and laughter, along with letting us know now when he is in pain or not in pain.  These are all changes for the best since his accident. 

Well that is all for now.  :)
Joanna

We have set up a " For the Benefit Account for Peter Eickbush" at Oregon Trail Bank at any of the branches in Guernsey, Chugwater, and Cheyenne, so those that wish to can contribute. If you would like to have the account information so you can just transfer please contact Naomi Loomis or Joanna Lulf and we can get that information for you.

OK so the address for the Postal Service is 3425 S. Clarkson St. Engle wood, CO 80113 Attn: Peter Eickbush Room 212 C/O Guest Services
Fed Ex and UPS: 3427 S. Emerson Street EngleWood, CO 80113 Attention: Peter Eickbush Apt: 201

Craig Hospital Update 1/25/2013

Here we are 10 days into a great rehab stay at Craig Hospital and things are going great.
After several rounds of testing they had found that pester still had some bleeding on his brain, so we are watching it closely to make sure that it doesn't grow and are doing some Genetic testing to see if there are disorders that we need to be aware of.
On the bright side Peter is adjusting well, as seems to be enjoying his time here,  his days are filled with classes that help him to recover his memory and to help his brain build new pathways to what is stored inside.  There are lots of activities that we have been able to get him involved in like tie dying, cookie making, he was able to play the WII Bowling game with his left hand all while standing.  It is so exciting to see his progress.  Craig's moto is to push but not to push to hard that they regress so even though to me it seems they are not pushing very hard but they are the experts at Brian injuries and I have to learn at times to take a step back.
This weekend he was able to go on what that call an outing to the museum in Denver with some of the other patients, of which he seems to be growing friends with a few, he has picked up the game of trash, which is a card game that I don't know.   He has taken a fishing class and gardening class, all these things help his thinking skills.
We have a family conference this coming week that will tell us what they expect Peters outcome, stay, ect., to be so we are looking forward to seeing what they all have to say.  It has been a great experience seeing that it is not only just us that has hard times and I have learned so much from everyone and all the other families at Craig.

Well that is all for now and Peters says HI to everyone.

We have set up a benefit account at the Oregon Trail Banks in Cheyenne, Chugwater, and Guernsey to help with expenses related to Peters stay in Denver.


Thanks for the continued prayers and more news to come soon
Joanna

Craig Hospital Update 01/20/2013

    Well I know it has been awhile since I have posted an update, but it has been quite a whirlwind of a Trip once we got down here to Craig.  We arrived safe and sound on Wednesday the 16th of January 2013.  It was sad to leave the comfort of the ARU unit in Cheyenne, but exciting know that we were going to a great facility that deals only with brain injuries.  I was extremely worried since I was the only one in the car driving Peter to Denver that we may have issues, but prior to the trip I explained what I expected out of him, i.e. , good behavior, if you need something ask, please don't grab for the door, and then I asked if he would like to watch a DVD, and was so excited that I had an old western and he said " Yes" With enthusiasm, I put it in and put his headphones on and away we went.  It was just about noon when we were just a few blocks away and i realized that he would have already missed lunch and I saw a McDonald's, I turned to him and as him if he would like to have a Double Quarter Pounder and some Fries with a Shake and he was all SMILES, I took that as a yes and pulled right in.  I waited there for him to finish before, making the short trip down the street to the hospital.
As I pulled into the bay to unload him I asked that he sit there while I find someone to help me get him checked into his new room and he did so without question.  Autumn was the nice lady that helped get a chair and told me where I need to park and that she would take him up tot the 2nd floor and he would be in room 212 where I should meet her and him as they were all expecting him and they would all get started right away.  Hmmm I said to  myself what does that mean.

    Well I soon found out that here they waste no time.   They get right down to it.  OT, PT, Physc, Speech, Rec Therapy, CNA's where all ready to get to know Peters story and take notes so that they know the best way to start and end. He was soon fitted to the bed, (they added padding as Peter said it wasn't very soft),  he was fitted to a wheelchair, (although it maybe only temporary it helps him to be more mobile on his own and to use his left leg more by pulling himself around more and that helps with his independence allot more as well),  He as adapted very well to this change better than I, his doctors, and anyone could have hoped he would have. 

    He was soon wheeled off for another round of precautionary test, CT, MRI, Ultrasounds, X-rays, Pictures, etc, they error completely on the side of caution.  I even had to take training and test to be able to help him with transfers and to be able to take him, without a CNA or a tech, outside, to the rec center, to his meals, so I was able to do the training in the 1st two days that I have been here and amazingly I passed and have been approved to have the on campus pass,  I must do more testing in order to have the off campus pass, I will continue this, this week so that it will only improve my knowledge for when he comes home. 

    Dad, Mike and Dora were able to come down on Friday night which was very nice to have the company as Peter does ask what dad and Mike are doing on a daily basis,(sometimes I feel like chopped liver lol), it was very nice that they had that time together and Mike, Dora and I were able to spend some family time together as well, we haven't had much of that lately and I am sure Dora feels the effects of that too. 

      We were able to make it to the Stock show for the Wild West Show which she was overjoyed to Video the whole thing to show to Peter, bless her heart she thinks to much of him and she misses having him at home, she ask all the time when he is coming home and I wish that I had a concrete answer because that would mean I would know when I am going to be home as well. We were also able to make it to the late Rodeo of which we sat in front row by the roping chutes which of course she loved because she was on camera the entire time the ropers, steer wrestlers, or anything else was going on at that end of the arena.

  Today was a rough day for me saying goodbye to Mike, Dora and Dad knowing that once again I would be here by myself as I miss my family, but I know that Peter really needs me here and that Sharleen and Mike have it under control and I need to learn to let someone else take on that burden as much as I will let them.  I have been attending all of the OT, PT, Rec. Therapy, Speech Therapy, Physc. Therapy, Breakfast, Lunch, Dinner, and it makes for a very long day just for me, Peter seems to be handling it very well,  Today he even went to the recreation room and WATCHED FOOTBALL with HIS GUYS,  it is great that he is getting to know those on the floor with him, it really makes me smile as he starts to socialize a little bit more, he does get tired and has been getting in rest in between which is good the team says, and they a right on top on anything that we have concerns about, wither it be, hearing, eyes, weight, walking, etc. and they have a wonderful open door policy.  All the doctors, nurses, cna's, techs are all great and Nice to work with and are so willing to help us all learn which is what I and our whole family need at this point because this is such a different injury then what he had before that after rehab we will still be dealing with issues at home and having tools in our so called toolbox to take home with us will be worth so much.
    I am hoping to be able to pick up Dad and Dora again next Friday in Cheyenne after her basketball game and bring them back to Denver to spend the weekend with Peter as the have a outing to the Museum of Nature History which I am hopeful all will enjoy :) and it really gives dad and Peter that one on one time that Peter is desperately craving at this point from dad.
  
      Peter has a full week already planned out for him which includes recreation time, speech, OT, PT, Physc, rest time, I am fully involved in all of the therapy session as that is what the doctors and staff have asked and I am willing to do as much or ask little as they want just as long as it is a help in getting Peter home sooner and in the best shape that he can be in. They have even been able to upgrade him from having someone in the room with him all the time since he has learned to push the nurse button and talk to them and let them know what he needs to just having them watch him on the camera from a nurses station just a few doors down which is a big big big improvement.

     Right now the visiting hours are fairly limited and are from 5pm to 730pm and I would ask that you call me at 307-631-6797 ahead of time just in case we have some rec activities planned so that we can be in the room and can expect you.

     A big thank you goes out to the ARU unit in Cheyenne as they did a fabulous job in getting Peter to this point because without that team of doctors, nurses, CNA's, techs Peter would not have been able to make it to Craig hospital and get this level of care so for that I will forever be grateful and once we get back to Cheyenne you can be you will be one of our first stops to show you how much he has improved.

     I am staying on campus here at Craig full time for the time being the apartment phone number is 303-789-8477 or my personal cell phone for which I carry all the time is 307-631-6797

We have set up a " For the Benefit Account for Peter Eickbush" at Oregon Trail Bank at any of the branches in Guernsey, Chugwater, and Cheyenne, so those that wish to can contribute. If you would like to have the account information so you can just transfer please contact Naomi Loomis or Joanna Lulf and we can get that informaton for you.

    OK so the address for the Postal Service is  3425 S. Clarkson St. Engle wood, CO 80113 Attn: Peter Eickbush Room 212 C/O Guest Servies
    Fed Ex and UPS: 3427 S. Emerson Street Engle Wood, CO 80113 Attention: Peter Eickbush Apt: 201

01/13/2012

Peter is continuing to make great strides of improvement and I am so excited to see what Craig has in store for us.
Peter and I will make the trip on Wednesday the 16th, to Denver to start the journey with Craig Hospital.  I have had the opportunity to talk and meet with several of the team members and they all seem wonderful and I am looking forward to this next adventure for Peter.  I have made the decision to stop working full time for the time being so that my efforts can be towards getting Peter the care and treatment that he needs and so that when he comes home there is someone here to take care of him.
We have had some more good news that Peter has been moved up to the top of the brain waiver list, which means once he makes it home we will have more assistance from state in the form of therapy, which we wouldn't have had, had he not made it to the top of the list.  It is amazing how much red tape you have to go through in order to get the help for those you love.  many times I have asked our wonderful case worker Jennifer at the ARU what happens to those who don't have the family backing that Peter has, and she has only one answer and that is they just slowly disappear,  it is so sad to me and makes me want to advocate for each and everyone of them, but I know I don't have the time.
For now my plan is to be in Denver for as much of the time as I can.  I also have obligations to my daughter, as she has sports,  then being able to take dad to and from Denver to allow him the time to spend with Peter as well, will be time consuming.  I am sure hat once we get schedule down it will seem much clearer, but at this point what I know is this,  the first week will be a big adjustment period for Peter and the TBI team at Craig, I will be there for the entire 1st week and will be bringing Dad down on Saturday- Monday as well As Dora since Monday is a holiday, and then taking them back to Cheyenne and returning to Denver Monday night for the remainder of the week.  After that we will see how Peter is adjusting to the new therapy sessions and how the new program, and will make any adjustment that are needed from there.   I am so grateful for my wonderful sisters who help with Dora and for all the family and friend a that have been so diligent with the prayers.  Again our family can not thank you enough for everything everyone has done. :)  so as of Wednesday Peter will no,longer be here in Cheyenne but will be in Denver, CO as soon as I can get an update out from Denver I will try to do so, but I am not sure how the program works there so I am trying to keep my schedule open so that I to can "go along with the program so to speak" .
We have set up a " For the Benefit Account for Peter Eickbush" at Oregon Trail Bank at any of the branches in Guernsey, Chugwater, and Cheyenne, so those that wish to can contribute.

Till next time
Joanna Lulf

01/05/2013 Update

Greetings fom a brand new year.

I have been great at procrastination, this past year as well as letting my time get away with me and not managing it very well.  I can use every excuse in the book not to keep everyone updated on Peters progress but it wouldn't be a good enough of one.

We have been very blessed to have him in a great facility with excellence doctors, nurses, CNA's, and case managers that have helped our family through this entire process.  It was just last week that we thought we would have to move him to a skilled nursing facility so I went and toured the one and only one that had said they wold take him till Craig hospital in Denver had a spot, and I was in total dismay that I was in tears when leaving that this is where someone's loved one would have to be.  It was sat at that moment I decided that if no other options opened up and that was where he had to be I would bring my blankets, sanitizers, phone, computer, and stay by his side for the 18 days that he would need to be there as I felt it was not the right place for him, but it was the only way for us to get him to Craig as if we were to bring him home before going to Craig they would not accept him.
I returned to the ARU unit in tears where his case worker stopped me to ask how the visit had went and I had explained, she then Went into the weekly meeting with all the staff and doctors and they had conversations in which they all where in agreement that 2 moves for Peter where just not in his best interests, so my prayers were answered and he as able once again to stay at the ARU unit and continue with all the wonderful folks ther that have given him such love, care and understanding.

Shar made a great New Years dinner for Peter which made all the others in the unit jealous as he sat there and ate it all (wasn't a big fan of her dressing) but was kind enough to try it.  He is gaining more and more weight each day and continues to fill out in all areas of the body which is a good sign.  Shar also brought up pedicure supplies to work on Peters feet, turned i to an hour and a half project, which he Tolerated really well and now he feet are looking " normal" again and we even got a smaller and a chuckle out of hi over it.  He is getting more and more patient with each and every of us and enjoys talking and asking questions.  His walking and climbing skills are coming along and is nothing short of a miracle what he has accomplished in such a short amount of time.  All of the doctors and nurses say that all the family and friends support has such a HUGE amount to do with his success that we need to keep it up.  His short term memory is still failing but will hopefully come with time. He has been switched to a full normal diet and regular liquids which is a big deal for him as he loves orange soda and root beer.

He will be moved to Craig hospital in Englewood Colorado the week of the 15th, the first week or so we will probably be asking that we limit visitors strictly to immediate family, as this will be an adjustment time and very confusing for Peter according to the Traumatic Brain Injury Team at Craig Hospital, my plan is to be there with him for the 1st week and longer is needed during this time as they feel that it is important that family participate in the rehab process and all of his therapy session as well as attend family sessions that they offer for us to better understand how to cope, handle and care for someone with a TBI easier after they return home.  The assumption at this time is his stay at Craig old be as short as two weeks or as long as eight weeks it will depend on how well he accepts the treatment plan.

Our lives take such twist and turns and you never know which v in the road is the correct one to take and if you are making the right decision,  I often wonder each day if I am making the best decisions for Peter,  I have tried every time when making a decision to make it based off of just like he were my own child. WhenPeter is able to come home we have been able to get it set up that we will have home health, speach therapy, occupational therapy, physical therapy, physiological therapy, as well as a few other helpers to come into the home and help with his care as needd which will be great help to me.  It has been wonderful to have a team of medical professionals that have gone above what I ever expected them to do and offer a hand in guidance through this entire process.

I want to also say thank you to all the friends and family out there for all your continued prayers and help for without it who knows where we would be today. And lastly tomy sisters for putting up,with me I know sometimes I am not always the easiest to get along with  but I just want what is best.  Love you all I will try to keep the post coming as more updates come in with when Peters final move dates come in and what his room will be in Denver.

Cheers and a Happy New Year To All
Joanna

The Final YES from Craig Hospital

It has been a few days since we have done an update on Peter, so while sitting here telling him how much it has snowed outside and that it sure would have been nice to have another set of hands on a snow shovel I thought I would get in a quick update for you all.

Yesterday, I met with Craig Hospital to give them my after rehab plan for Peter, what my expectations were, and then to listen to what their expectations would be of us as a family.  She was able to watch him during one of his PT therapy sessions and was extremely impressed by his progress. I was more nervous than I had ever been for a job interview,  as for me this was so very important as I have felt very strongly that Craig would be a good fit in getting Peter back to the most active person he can be since the accident.

So today was D day and we got the answer we have been waiting for ALL the doctors and the ENTIRE TEAM has said YES.  He will be going to Craig after the 1st of the year.  They meet on Wednesdays for bed planning so by next Wednesday we should have an exact date that he will be leaving the ARU unit here in Cheyenne and going to Englewood, CO @ Craig Hospital.  He will be staying at Craig for at least 4 weeks and it could be up to 8 weeks.  Craig's rehab process requires that the family participate in the therapy sessions during day which will be a challenge but manageable.

I am excited for Peter to get top notch therapy from a great facility.   When I get the exacts dates of the moves I will post them.

Peter continues to improve everyday, and today he walked 10 times back and forth on the bars,  his left arm is slowing making improvement as the nerves are starting to come to life.  This makes it painful for him and uncomfortable but it is a good sign of activity in his body.

Well that is all I have time for now as I am off to pick up Dora from school.  Thanks again for all the prayers and support.

"Are YOU done yet?"

One thing Peter has never really expressed is his personality.  He's been content to just sit in the background of life and fit in wherever needed. 

Since his brain injury, we are seeing a totally new personality!!!!!  Some days, some moments, the new personality is awesome and other times, well .... it is an adjustment period for all of us!  :-D

Those who have a loved one, or friend, who have gone through TBI (Traumatic Brain Injury) know that it is a stage when they have "outbursts".  Please understand if you are there and witness an outburst, he just needs reminded to calm down and be kind.  I witnessed the CNA remind him to be patient as he was really hungry and wanted his dinner ... NOW!  I think we've all been there, done that, when we were STARVING and just wanted something to satisfy our hunger !!!! :-D

Yesterday, I decided to stop by about dinner time 5pmish.  Peter enjoyed his dinner very much, chatted for a few minutes and then informed us he was ready for bed!  So, we asked if he would like to sit in his wheelchair, but he declined.  He went to bed.  I was yacking away with Peter, Joanna and the CNA (cannot remember her name) and all of a sudden he uses his right hand and displays a PAC-man figure at me with his fingers, while relating via his mouth a similar voice I used to hear from my sisters when they wanted someone to be quiet ..... Tssssssssssssshhhhhhhhhht !!!!!!!!!!!!!!  Ha ha ha !!!!!!  Then he said to me, "Are YOU done yet?"  Ha ha ha !!!!!  He is having no problem getting the point of being quiet, especially around bedtime!

Another funny thing that he did to show his latest personality.  Sharleen told him it was time after a meal to brush his teeth and he did not feel moved to do so.  So, he looked at Joanna and said to her while pointing at Sharleen, "Will YOU make HER leave?"  LOL.

Anyway, no complaints from us whatsoever.  We are SO thankful to see SUCH progress over the past month.  Hard to believe that it was ONE MONTH ago TODAY that our lives changed.  We are so grateful for steady progress!  oops.... I said progress right?  PROGRESS !!!!!  Wahoo !!!!!!!!

Today he mentioned that his left arm was tingling and he had sensation, so Joanna rubbed it and he said it felt better.  He was able to use his feet while on the parallel bars with the OT/PT gurus the other day too!

Well, this is long.  I just wanted to share a few laughs on our road to recovery.  I am learning that sometimes our experiences might be difficult, but if we can focus on the funny things too, it sure helps the time fly and keeps our attitude in check!

Have a great week & thanks again for remembering Peter, and family, in your thoughts and prayers !!!!

Peter is Staying Put Till At Least the End of Dec Update 12/14/2012

As the time keeps on passing by it seems like the days are going together and I keep loosing track of what day it is.  It seems like just yesterday that the accident happened and I had gotten the phone call.   Everyday seems like a struggle just to get through and then I remember what Peter must be feeling like on the inside and unable to express but in those brief moments of "outburst's" as we are calling them.

We are glad to say the Craig Hospital in Denver has conditional accepted Peter for their Rehab program, they have a top notch brain injury rehab program and will be keeping him there for 3-6 weeks, however they do not have a bed until the 3rd of January.  This means that he will be staying at his current rehab until Craig has a bed.  Now I say conditional because they will be coming up on Tuesday to review and speak with us and make sure that he fit protocol!!!!!  I am so thankful that we finally have a YES from someone after all the long line of No's from all the other's.  It has been a long road thus far and Peter has come such a long way.
Today Peter was showing of for me on the parallel bars with his walking skills, yes I did say walking skills, now even though he still can not walk without the assistance of an aid beside him or the bars his LEFT leg has started to respond and now his left are is slowing responding as well.  We are so excited for him and I try to show how much I am each and every time I see him as it seems to help lift his spirits. 

As with all brain injury's you never know what to expect so,  this is no different with Peter, he has good times and bad times, and we just keep reminding him of what he can do, and how much he has already accomplished, as he has come so far in such a short amount of time.  He gets agitated very easily and so we are mindful of this in how we are approaching his therapy and care.  We still have to remind him every day of the accident, where he is, who his therapists are, who his nurses are, why he can't go home just yet, why he is not the same as he was before, why yelling is not nice, etc and this does seem to help him understand, but it is a process that does have to be repeated everyday as his short term memory is not working well at this time.

Peter does enjoy visiting for short periods of time and then he likes to rest and then likes to visit or do activities, he remembers things from years ago, and is starting to joke around a little which puts a smile on my face.  I have really learned from him over the last few weeks how the little things in life can be so enjoyable,  how could I have really forgotten them?  Well I sure did,  I am thankful for all the family and friends that have been a great help and continue to be a great help through these times as this is what really matters.

So for now Peter will stay in Room 314 Cheyenne Regional's East Building Acute Rehab Unit
2600 East 18th Street
3rd Floor

Peter Update From Joanna

Well a week away sure does change how much progress you see in someone.   When I left a week ago I was weary and afraid and uncertain if I should even leave Peter as I have stood by his bedside in constant vigil with hope and love, knowing that God works miracles.  I had many, many phone calls and updates as I had "requested" from my sisters, nurses, and anyone else that I could get to talk to me about his progress while I was gone as like a mother looking over her children, I didn't want to miss a thing.  I really don't think that I realized how much of a difference there was going to be though until I walked into his room this morning and he woke up and said for the 1st time good morning Joanna, I Love You,  and then,  Proceeded to ask if he could please come home with me.  I of course told him no and had to turn away for a moment as tears came to my eyes as I so want him home as I miss him so much.

Many of you many not really realize how long of a road this is for him, we are going to be leaving the ARU unit on the 14th of December and will be heading to a different Rehab facility, we are not sure which one yet or where it will be, but this is going to be a long, long process and it takes months, and even years to recover for a TBI, and for Peter it is about consistency, love, family, rehab, and nutrition, making sure that he is getting the best care that we can for him, making sure that US as a family, and family to me is not just "blood" we are all family in God's eyes,  are there for him to pick his spirits up when they fall, making sure that others are there to encourage him a long the way.  It is so important I realized to stay positive and to keep your head up for him because he can sense it even if you try to hide it.

He has gained 5 lbs or so in the last few days, and as always has a great appetite,  he had a bad fall last week and had to go for another CT scan which came back clear but it kept us on our toes.  He is slowing regaining some use of his left leg, still not a lot of movement in his left arm, but after talking with the doctors they say that the sooner we get it moving the better because the longer it goes without moving, the more likely it is that that arm or leg will stay immobile.   We hope that that is not the case but getting him into another Rehab would continue the work that has been started and would most likely continue the progress and increase the chances of him upswing those limbs again.   He ask what he can do to help all the time so hat is so great to see, love it, when he is getting ready to sit up,to eat or needs to go to the chair, his response is what can I do,  the willingness is just unbelievable and shows me what a great spirit he truly does have.  

For now he is still in room 314 at the ARU Unit at the old DePaul hospital in Cheyenne and will be until the 14th.  Visitors are always welcome and he really does enjoy it.   Thanks to everyone for all your love and support.

12/3/12 (Peter) Update from Hwy 314!

Howdy!

It has now went from a long road to a speedy highway!

We have seen a lot of p-r-o-g-r-e-s-s!!!!

Peter says, "Hello!" from room 314.  He just vocalized it to all of us! (John, Shar, Rachel, Becky, his CNA, and myself.)

Peter had a few workers stop in and visit him over the past few days.  A special thank you to Angie L, Justin R., and today, Loren C.  Also, a few friends have stopped in!  Tim and Myrna, Elmer, Nolene & Laramie, Art and Dolly, and his ornery cousin, yours truly!  :D

Becky, the bestest CNA ever, changed out Peter's bed and he has been able to sleep so much better! 

Peter has had a very busy schedule these past few days with Physical therapy, Occupational therapy, and Speech therapy up to three hours each day.

Peter has done a whole lot of talking today!  

Rachel, Peter's four year-old niece, was spying his pureed corn yesterday, and asked Peter if she could have a bite.  He agreed, and she went home trying to convince mommy to "Cook her corn just like Peter's!"  :-D

This evening, Rachel again asked Peter if she could have a bite of his food. He agreed, and so she tried his Potato soup and also, his pureed mixed veggies.  She says it was tasty, however, she likes the corn better!  So, maybe, just maybe, mommy will get a hint and make more pureed corn for Rachel? :-D 

UPDATE:  Rachel convinced Mommy to cook pureed corn and tried about two bites and she was done!  LOL  Isn't it funny how our taste buds trick us into thinking that something so delicious can be re-created? 

Peter is now relaxing in bed watching Disney with his niece Rachel laying in the bed next to him!



A special thank you to all who continue to remember us in your prayers.









 

addntl update 12-1-2012 on Peter Eickbush

Laurel put very nicely the events of today.  Thank you Laurel!  In addition to what Laurel mentioned.  I might add that after Laurel left that Joanna called me and I was standing right next to Peter while he was still sitting in his chair after eating his very filling dinner of Philly cheesesteak Mashed Potatoes and Gravy Corn and Vanilla Pudding and Chocolate Pudding and a variety of drinks.  He heard Joanna on my phone and he raised his hand up wanting my phone so I put Joanna on speaker and let him talk to her and he did speak to her and he spoke to Dora as well and even said Doras name.  I have to tell you after the last couple days of not wanting to do much he sure did a great deal today and I found the nich to get him to start talking more just give him the phone and he will talk to just about anyone I think.  When Rachel and I got ready to leave I told him that he needed to really concentrate on doing the excercises that they ask and get that left arm and leg working so he could come home and we could take trips and he said "OK I Will".  Becky the CNA in his room also showed me a picture that he colored today in one of his cars coloring books and I asked Peter did you color this picture?  It is very nice and he responded, "Yes," and nodded his head.  Well let this be all for now as I am getting sleepy and I need to get some rest so I can go to Peters room in the AM and see some more positive things happening.

12/1/2012 - Afternoon Update on Peter

Shar asked me to update everyone on how Peter is tonight.

Peter was moved to a room a few doors down.  He is now in 314.  I decided to stop in and see how he was doing today, and I didn't read the blog to see he had moved.  So, you can imagine the surprise when I walked in what I thought was his room, and an older lady smiled at me from the bed!  I know I looked a little confused, because she said, "I bet your looking for that younger man?  He's a few doors down from me!"  :-D

I sat with the CNA for about three hours this afternoon as we both tried to talk to Peter.  The nurses and doctors have changed a few things today.  They feel that the fact he is on anti-seizure medication warrants bumper-like pads and a special cover over his bed.  It seems silly to me, but what do I know? I noticed Peter appeared as though he didn't really like it and he slides fairly easily down on the new slippery covering over the bed.  I guess if it makes the staff feel a bit safer, than maybe that is a good thing?  :-)

My mom called as I was sitting in the room with Peter, Shar and Becky, the CNA.  I asked her to talk to Peter and see if he would respond.  I had tried everything and he was just really quiet today.  A massage, tickling his toes, massaging his shoulders, etc., just didn't seem to cause any reaction.

My mom asked Peter via speakerphone on the cell how he was.  His reply was, 'fine!'.  She than told him she was glad that she could hear his voice and he said, "You too!".  Sharleen encouraged him to say thank you, and he did!  She then encouraged him to say I love you and he did!  Mom's response was thank you and he responded, "Welcome, Dolly".  So, now I know who to put on the phone if I want him to talk and he's not talking to me, or perhaps kinda tired! :-D

Another thing I thought was special was that Peter was able to facially recognize certain family members as Shar pointed out photos from her cell phone.  It is a very special thing to see p-r-o-g-r-e-s-s!


Becky, his CNA, told us that he fed himself today and even took off the lids of the containers all by himself!  PROGRESS !!!!!!!!!!!!!!


We are working on helping him get his smile back.  Did I mention that I LOVE Peter's smile?  He's sure a special young man to ALL of us!

12-1-2012 Peter Update

Today I went up to see Peter.  He spoke a little but then he went to sleep and was taking a little nap before therapy at 11am.  They moved him to another room.  He is in room #314 now.  He seems to be improving each and everyday.  I will report more later today but I wanted to make sure everyone new his new room number.

Pete from My Eyes

Joanna has done such a good job in keeping this blog updated and for that I want to tell her "Thank YOU.'  But I decided that I could also write a little about Pete.  So here it goes.

As I sat with Pete last week I was thinking about how lucky we are to have Pete and how much I have learned from Pete. 

Last Sunday as Cody and I sat in Pete's room I saw peace and I found comfort.  We were not sure if Pete would be with us come the next morning.  I prayed that I would let God be in control and I would have peace with what ever God discussion would be.  The nurses that day said that we should prepare our selves to make a life or death discussion.  I had a flood of emotions and left there that night with a "Pete, I love YOU."  I felt peace and reassurance that God is in Control and I didn't need to worry.

The next morning as I prayed, I felt the need that I need to be more "Simple" like Pete.  When I arrived in Cheyenne and Pete was doing so much better I knew that I need to be more like Pete.

So what have I learned from Pete?
Here is my list:

Willingness- Pete is always so willing to please and to do what you ask him to do.  I would like to be more like this.

Be Tough- Pete is the only person that I know that can hit his hand with a hammer and never say a thing.  He IS TOUGH.  He has shown that in the last week.

Keep Trying- Pete always tries.  And he tries again and again.  I love that about him.  I would like to be one that keeps trying.

It's Important to be A Buddy- Pete is a Awsome Buddy.  Just ask Mike, Cody and Dad.  I think that life is all about having buddies.  Buddies are so important.  It's important to have someone that listens.  And Pete is a good listener.  You can talk and talk and Pete just keeps shaking his head.  I want to be a better buddy.

It's ok to Be Different-  If you know Pete, then you know that Pete loves ranch dressing and Ketchup on EVERYTHING.  I have seen him but ranch and ketchup on salad, potatoes, in his soup, on his sandwiches and the list goes on and on.  And you know what I think, If it puts a smile on your face, then go FOR IT! 

Be Simple- As I talked to the workers the other Sunday about Pete.  I thought about how simple we need life to be.  Pete likes simple things like a old yearbook and a pencil and paper to write a letter.  I think that we get so carried away with life that we make it way more harder than it should be.  When have I sat down and wrote an old fashioned letter?  Or when have I stopped and looked at a old yearbook?  Well to be honest with you I can not remember.  What I do know is that, I have been trying to be more "simple".  I believe that are service to God can also be Simple and I want to strive for that.

It's Ok to take a Nap- Pete likes a Nap.  I think that naps are good for you.  (I sometimes wish I had time to take a nap but you know last time I tried, the twins had gotten into markers, and candy and and the list goes on.  I learned my lesson.  I had to clean and clean)

You are Never to Old to "Play"- I always loved to see Pete play with the kids.  And he played and played.  It made me smile and all the giggles from Pete and the kids are priceless.

God is in Control- So we all know that there are life lessons.  These past couple of weeks have been a lesson for me spiritually and real life.  It was so hard on me to see Pete lying in a bed, a machine breathing for him and wishing that I could take his place.  But I know that God has a plan for each one of us.  We do not know what that is but I am grateful that we don't have to fear for he knows.  Like Joanna has said in posts before, we are very lucky to have family and friends that help us.  That don't give up and that keep praying.  I have been reading in Proverbs.  I love that message there.  It says,"whoso hearkeneth unto me shall dwell safely, and shall be quiet from fear of evil."

Have you learned anything from Pete?  I would like to know.

Thanks again, each and everyone of you that has shown our family what love, care and praying can do.  I am humbled by the phone calls, texts, and messages that I have received.  I think that I can also speak for my sisters as well.

Naomi

11/25/2012 Update

Peter was moved to the ARU unit on the 3rd floor room 317 at the old DePAul hospital in Cheyenne . It is great to see him making improvements everyday little that they may be they are improvements none the less.   They have asked that if you visit it is best to do so either in the mornings or after 4 pm so that he has all the therapy done for the day or you can contact Shar, or Joanna and if you don't have our numbers just message us on Facebook and we will respond with what his therapy schedule is for the day is so you fit in your visit in around the therapy.....  Naomi, Cary, Laurel, Dolly, Mike, Dora, and I all got to visit with Peter today and he said his first words...... Yes and No...... So exciting and it gets our hopes up that we only have higher to go. He has such a willingness to please that I think big things are to come.    Yay .
This type of rehab unit is Intense and they expect them to be outa there within two weeks is the goal, however if they don't make that goal and are still making progress they will stay until hay have reached there full potential which is great for Peter because he will receive , OT, ST, and PT for a max of 5 hrs of therapy per day, he will interact will all the others in the unit , like eating and other activities,  he has lost enough weight that Naomi went to Wal-Mart and got him comfy cloths and shoes and some awesome boys toys to play with to stimulate him with.   It is so wonderful when you have a family that u can communicate with, love with, and feel that you are all on the same page.  It makes things so much easier and for happier times.  Thank you sisters we have each others backs and thats what family is about!
Today I am so great full  for my two wonderful sisters for without them this last two weeks would have been extremely difficult, I am great full for the workers the were there everyday for the first week for encouragement as that was just what we needed, I am ever so great full for Laurel and Dolly and of course Dolly's husband for allowing them to be here and help us in our great time of need, today I really needed it. Thank you Art I really Appreciate it, you don't know how much it means to have them here.

I am thankful to for Uncle Elmer for Walking our sister down the aisle at her wedding when our dad had to,stay with Peter in the hospital that means so much and that is something I will never forget. It means the world to me that even when others were having hard times, Noaleen you set them aside and you came running to our rescue, thank you so much for that, just knowing that we are a family and we can lean on each other means a lot. LaDawana thank you for stepping in when we needed the help with the girls and I needed to be by Peters side, I knew she was in good hands it was blessing g to know that you were here.

We still have a ways to go in Peters recover process but I believe God has answered a lot of prayers, and. Pray every day that his will to be done and for myself to be doing what he want me to do,  it is not always the easiest thing for me, and I am trying,  Dad seems to be faltering a little with Peter at his time so a few prayers his way may be in order, he seems to be exhausted and not among this as well as in times past, I am pray. For his peace and hoping that with the all progress that Peter has made maybe that will lift his spirts and will help him some.

Well that is all for tonight as I think this is long enough and if I have forgotten to thank anyone I apologize n advance as it has been a whirlwind of a couple weeks.

Joanna